Photo Challenge

Husband and I – January 1, 2019

I’m going to try the 365 day photo challenge again this year. So here is photo #1, my husband and I in one of our favorite places to hang out…in bed. I’m going to have to get use to having my photo taken, OY! This Prednisone face with bullfrog neck is driving me crazy, but it is what it is. At least my hair looks good. Thankfully, I won’t be on this dose of Prednisone forever so the size of my face will go back to normal, eventually.

I got the results of my December 27th right and left heart biopsy and blood tests. My white blood cells are back to normal, which means my bone marrow is finally doing it’s job. All of my other blood work was good, just needed some minor tweaks to my medication. I was finally cleared to drive, so I got to drive myself to cardiac rehab on Monday. My biopsy came back with no rejection…EXCITING! Even more exciting my Kappa and Lambda Free Light Chains which would be a measure of the amyloid in my system were the lowest they’ve ever been, meaning I’m still in complete hematological remission.

I’m so happy I’m starting to feel healthy again…

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