The doctors said the first year after transplant is always the hardest; I’d say that’s an understatement. Don’t get me wrong, I feel better, better than I have in several years. I can walk, climb stairs, do yoga, take dance class, clean my house, drive, and most importantly I can breath. It’s amazing the little things we don’t really think about that we take for granted when we are able bodied and don’t have so many limitations. Just lifting yourself off the toilet can be a struggle when your sick and dying, but just as quickly as life can go to hell in a hand basket it can also turn on a dime.
This first year it can swing up and down. I was thinking everything was going OK until I started having some pain in my abdomen. Today I just couldn’t take it anymore and I called my hematologist, transplant team, and local general doctor. I’m still waiting on blood test results but the ultrasound confirmed an enlarged spleen. I guess you could say this is the down swing.